This website has been developed to help people affected by Bardet-Biedl Syndrome in Australia to know that they are not alone.
This site aims to be a base where people affected by the condition, their families and parents of children with the condition can contact us and find links and have contact with other Australians and people worldwide who are affected by Bardet-Biedl Syndrome. That way you will truly know you’re not alone.
Unfortunately we are not a support group but this is the first step to laying those foundations. Currently there is no official support group for Bardet-Biedl Syndrome in Australia. Through this site please contact us if you wish to support and would like to be involved in any means of future ventures to start a support group.